Wednesday, September 24, 2008
Heading for Home!
Today when I went to the hospital it was all great news. Fred's lab results show that the platelets and white blood cells are back to normal levels, his blood cultures have not grown any bacteria for 3 days, and best of all, a repeat echocardiogram indicated that his heart has recovered very well from all the stress of the massive infection! Nine days ago Fred's heart was pumping blood very weakly as measured by the "ejection fraction"- the number should be 60 and Fred's was 10. Now Fred's ejection fraction is 55 -thank God! I am in awe of the power of prayer, the miracle of Fred's body recovering so well, and the excellent care provided by the doctors and nurses of Paoli Hospital. Fred is on a new medication for his heart and we'll be following up with the cardiologist. Everything is set up for discharge from the hospital on Friday the 26th. Fred is hoping we can stop at Coldstone on the way home for ice cream!
Monday, September 22, 2008
Cabin Fever
Fred is feeling better and getting antsy (which certainly runs in the family!). Yesterday evening his bed was switched to a nice soft Clinitron bed which he enjoys at home. Today he was doing fine with no supplemental oxygen. The pulmonologist said Fred's lungs sound better and that he's doing great! He had a video swallowing test, and was given the green light to eat pureed food and honey thick liquids with supervision. I don't think anyone could have enjoyed eating pureed meat and vegetables more than Fred. He proclaimed that his first meal in eleven days was "Delicious!" He also had some occupational and physical therapy at the bedside, and was assisted to a standing position with two therapists. His blood culture from 9-20 was positive today so he's going to be staying in his isolation room a while longer. We are very grateful for all the prayers and for Fred's miraculous turnaround!
Sunday, September 21, 2008
Patient Endurance
Fred is doing better, thank God!! He did have low grade fevers yesterday;100.4 last night, and was given Tylenol. Since the doctor had decided on Friday the 19th to give him continuous tube feedings and nothing by mouth until another swallowing test on Monday, this has caused him discomfort. He frequently asks for something to drink. He has to stay in a semiupright position(30 degrees) all the time, and it's hard for him to relax enough to dose off. His bed is firm and very unlike the extremely comfortable bed he sleeps in at home. He has to keep the tubing in his nostrils in for extra oxygen, which he's not crazy about. The IV Picc line in his left arm was bothering him, and he has another tube in his back which is draining his kidney. No wonder that it's hard to get comfortable! Fred needs to stay in the hospital until all the IV antibiotics are finished and there are no signs of infection. Obviously, it's hard to get rest in a hospital, and especially the critical care unit where Fred spent four and a half days. This has been a very long weekend for Fred, who has patiently endured much suffering for the last ten days. His spirits are good through it all, and I am amazed at the miraculous power of prayer and the body's ability to heal!
Friday, September 19, 2008
Steady Recovery!
Late this afternoon Fred was transferred from the ICU to the regular floor because he has been stable since he was taken off the ventilator. He is not allowed to drink or eat yet because he will get a video swallowing study next Monday, but he is receiving nutrition through stomach tube feedings. He is on 4 liters of oxygen, and that is an improvement from yesterday when he needed 6 liters. I talked with the home care case manager today. When Fred returns home we hope to work with the home care therapists and nursing staff who helped us when Fred was discharged from Moss Rehab three and a half years ago. Thank you so much for your prayers, love, and concern, and thank God for Fred, a great gift to us all!!
Thursday, September 18, 2008
Fred Fights Back from Sepsis
Thank you for all the prayers for Fred! He is improving, but still has bacteria in his blood, is on oxygen, and has a weakened heart and lungs from the terrible stress on his body.
Last night Fred experienced respiratory distress, which could have been caused by the kidney stone. With a dose of morphine, extra oxygen, and a "nonbreather" mask he became comfortable enough to get some rest. The pulmonologist said Fred was doing "okay" on the 6 liters of oxygen, and he needed physical therapy to get his muscles that support his lungs stronger. We need to remind him to use the incentive spirometer (the little plastic device you breathe into to get feedback about how you're moving air). The chest Xray is stable; pneumonia in one lung but not getting any worse. The nephrostomy procedure that Fred had on 9-16 was to insert a catheter in Fred's right kidney and allow all the infected urine to drain from his body. The kidney stone is still lodged and blocking urine from passing along the normal route. The plan now is to have the kidney stone dissolved by the urologist during an outpatient visit, so hopefully it won't cause Fred too much pain between now and then. Something that has been tricky since Fred's brain injury 4 years ago is his ability to describe pain and be aware of where it 's located. Fred was very restless all night on Friday 9-12; (I brought him to the hospital the next morning) and now I know that is a big red flag for him. When the nurses ask Fred if he's having any pain he almost always says no. His last two incidents of respiratory distress were triggered by pain. He's going to have a rehab consult soon which will be extremely helpful. Fred's platelets are almost back to normal today, as well as his blood clotting time. "You won't be needing me anymore!", said Fred's hematologist. His nurse today commented that she's never seen such clear urine draining from a nephrostomy bag. Thank God for that wonderful intervention which really saved Fred and got things moving in the right direction. This afternoon Fred had a brain scan, which his doctors ordered to help with neurological assessments. Fred needs lots of rest to continue this recovery so we ask if we could hold off on visitors while Fred is in the ICU. In a very weak voice today he asked when he can go home- can't blame him! What a wonderful thought! He will need to be infection free as determined by the blood cultures, and he may need some inpatient time at Bryn Mawr Rehab. We are so thankful to God for sparing Fred, and for the support of our beloved family and friends!
Last night Fred experienced respiratory distress, which could have been caused by the kidney stone. With a dose of morphine, extra oxygen, and a "nonbreather" mask he became comfortable enough to get some rest. The pulmonologist said Fred was doing "okay" on the 6 liters of oxygen, and he needed physical therapy to get his muscles that support his lungs stronger. We need to remind him to use the incentive spirometer (the little plastic device you breathe into to get feedback about how you're moving air). The chest Xray is stable; pneumonia in one lung but not getting any worse. The nephrostomy procedure that Fred had on 9-16 was to insert a catheter in Fred's right kidney and allow all the infected urine to drain from his body. The kidney stone is still lodged and blocking urine from passing along the normal route. The plan now is to have the kidney stone dissolved by the urologist during an outpatient visit, so hopefully it won't cause Fred too much pain between now and then. Something that has been tricky since Fred's brain injury 4 years ago is his ability to describe pain and be aware of where it 's located. Fred was very restless all night on Friday 9-12; (I brought him to the hospital the next morning) and now I know that is a big red flag for him. When the nurses ask Fred if he's having any pain he almost always says no. His last two incidents of respiratory distress were triggered by pain. He's going to have a rehab consult soon which will be extremely helpful. Fred's platelets are almost back to normal today, as well as his blood clotting time. "You won't be needing me anymore!", said Fred's hematologist. His nurse today commented that she's never seen such clear urine draining from a nephrostomy bag. Thank God for that wonderful intervention which really saved Fred and got things moving in the right direction. This afternoon Fred had a brain scan, which his doctors ordered to help with neurological assessments. Fred needs lots of rest to continue this recovery so we ask if we could hold off on visitors while Fred is in the ICU. In a very weak voice today he asked when he can go home- can't blame him! What a wonderful thought! He will need to be infection free as determined by the blood cultures, and he may need some inpatient time at Bryn Mawr Rehab. We are so thankful to God for sparing Fred, and for the support of our beloved family and friends!
Friday, September 12, 2008
A Southern Pierce Reunion











Wednesday, September 3, 2008
Enjoying Edina
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